The pain of infertility

This week was National Fertility Awareness week. The aim of the campaign is to raise awareness of fertility issues, the treatment they require and to provide support to the couples that need help.

One in six couples will experience fertility problems. One in SIX. Think of your group of friends; one of them is likely to be in their wilderness years, and I can tell you from bitter experience, it sucks. Your friend may not have told you about their struggle to conceive. They might shrug off their childlessness or failure to produce a sibling for their firstborn with a brave, “Oh no, I like my lie ins too much.” or “How can we improve on our perfect firstborn?”. Trust me, inside they are bleeding.
Unless you’ve lived in the doldrums, you cannot imagine how hard it really is. On the outside, you look okay. You look healthy, a functioning human being. You keep yourself busy. So busy that finding time to spend with friends with children becomes difficult, accidentally on purpose. But inside, something definitely isn’t working and even the most pervasive painkillers won’t stop it hurting.
Every time you log into Facebook, someone has posted a scan picture. Every time you go to the supermarket, you wish you had blinkers on to avoid the protruding bellies and glowing faces. Even popping into Costa for a caffeine fix isn’t safe; over in the corner is an NCT meet up, with perfect babies in their mothers’ arms. Suddenly, yours just feel so empty. In fact, all of you just feels empty. Cavernous. Empty, empty, empty.
Every month, you bleed and you mourn the loss of another opportunity. You cry, you hit the wine and you order an enormous take away. It doesn’t help. As your period subsides, you begin to build your hopes again. You buy gadgets that will tell you exactly when to jump on your partner (these are real passion killers). Instead of cosy pillow time, you shove a pillow under your pelvis and start bicycling your legs like crazy. You don’t drink. You only eat fertility foods. You have acupuncture, reflexology and any other ology that someone has told you might help. This time… It’s definitely worked, this time. And then you start to bleed again, and the tears just keep coming.
Then there are the people; oh my, the people. The helpful friends that tell you their partner only had to look at them (bully for you), that you need to relax (oh, silly me, I’ll just pop my desperate desire for a child out of my mind!) and even question if you’re ‘doing it’ right (yes, really). Then they’ll ask why you don’t ‘just adopt’. Adoption is a huge process in itself – it’s not like going to the supermarket and picking a child off the shelf. For some, it signifies an acceptance that a natural child is never going to happen for them and to these brave people, I take my hat off to you.
You may not know that your friend is currently going through IVF. They may have just gone a bit quiet while they’re treading the path through their own private hell. The process is overwhelming and all consuming, so if you suspect they’re going through a cycle, just back off – especially in the first two weeks.
In most protocols, the first fortnight is spent being plunged into menopause by a drug called Buserelin. When we undertook our first cycle, our lovely consultant told Lovely Husband to go on holiday. By himself. Mood swings, hot sweats, headaches on top of headaches and absolute exhaustion start as soon as the needle has left your skin for the first time. For the first time in years, you wish for your period to start. When it does… If it does (sometimes the Painted Lady likes to play her own little games on you and mess up your plan) you then live for your scan that tells you all is quiet and you can start to stimulate your ovaries to create eggs.
Now, your ovary is about the size of an egg. During ovulation, it grows to around the size of a walnut. During IVF, it grows to the size of a large orange. So yes, the uppers improve your mood a little, but you bloat and look pregnant, prompting the obvious questions. You need to drink gallons of water to prevent a condition called Ovarian Hyperstimulation Syndrome that could put you in intensive care. You live for the progress scans. The stress of these is worse than running huge budgets for major companies (trust me, I’ve done both). If you’re not ‘performing’ as the clinic want, your cycle is scuppered. Eventually, you (hopefully) get there. Egg collection. A surgical procedure to remove up to 20 eggs from your ovaries using a long needle.
Then the 24 hour wait to see if anything has fertilised. In our first cycle, nothing happened. The embryologist called and said it was like a school disco with the girls on one side and the boys on the other. We moved on to a more intrusive process called ICSI, which ultimately was successful, but I’ve seen friends who’s cycles have failed and every time, my heart has broken for them.
Assuming you successfully made embryos, you go for transfer and begin the bum bullets – a progesterone supplement that supports a potential pregnancy. The side effects mimic those of early pregnancy. You will feel nauseous, have sore breasts and go off certain foods. For the next two weeks, while you wait to carry out a pregnancy test, you live on a see-saw of has-it-hasn’t-it-worked. You plunge from wild optimism to abject despair at what you’ll do if it fails.
Your friend is dealing with all of this; they don’t want to deal with you as well. That said, if they tell you they’re going through IVF, be there. Listen to them. Don’t feign interest – really listen. Be there with a bottle of wine and a vat of chocolate if it fails and let them cry. Whatever you do, don’t dismiss it. And for god’s sake, don’t ask why they don’t just adopt.
The World Health Organisation lists Infertility as a health condition, meaning that sufferers can and should be offered treatment. With so many primary care trusts now refusing to fund IVF and the criteria for those that do provide funding becoming ever more obscure, the treatment of couples suffering from infertility is becoming inhumane and the condition is being labelled as a ‘lifestyle choice’. And that’s just it, it’s not a choice. PCTs will fund gastric bands, treatment for smoking and drug related conditions and not those that are living with failure to conceive? If we’re going to base clinical treatment decisions on whether a condition is borne because of a lifestyle choice, then we can slash the NHS budget considerably. Infertility leads to mental health issues, depression being a major factor. Is that a ‘lifestyle choice’ too?
I realise it’s not that simple, and I shouldn’t be flippant. I realise that not every couple can be helped, just as not every cancer sufferer can be saved. But this condition needs to stop being brushed under the carpet as something appertaining to ‘lifestyle’, or being labelled a ‘choice’, because trust me – those wandering in the wilderness really do not choose to be there and think about the process itself: Would you choose to go through that?
We have always been open about our wilderness years and the inception of the three ICSI pixies, and our consequent Miracle. But they are all miracles and without funding to those that need it, the joy of parenthood for those with fertility issues will become domain of the rich.

Find out more about National Fertility Awareness campaigns and give your support: http://fertilitynetworkuk.org/national-fertility-awareness-week-2017/
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The pain of infertility

A goodbye to those I’ve not met

Dear Frosties

Yesterday, we got The Letter from the very clever people at the clinic where you were made. I don’t know why they chose Little to be placed back inside Mummy instead of you. Little got herself cosy, and you were frozen. Knowing Little, she probably thumped you and made you stand behind her.

I dread this letter arriving. Did we want to keep the three of you frozen at -196 degC for another year, or will we let you go? They didn’t phrase it quite so kindly. They asked if we wanted to let you perish.

Perish. Taken out of your wintery sleep and left to fade away. A story that will never be told. A life that will not be lived. The very wording of the letter hits me square in the heart every time. With the Miracle growing inside me, my hormones are all over the place, and being asked if I can let my three potential babies perish is a bitter choice to make.

We were so lucky. Not only did we manage to make embryos, but they seemed to stick too. I don’t think of you as ‘leftovers’, but you were there in case we needed to try again. I don’t know if you are boys or girls or if you’d have blue eyes like me or brown eyes like Daddy. I don’t know if you’d have even survived being defrosted, but you’ve been on the periphery of my consciousness since you were made. I knew you were there and that you were safe.

With the Miracle on his or her way and your three ICSI pixie sisters, one of whom, like you, spent a year frozen at -196 degC, we’ll be done. Our family will be complete. But the nurturing, maternal heart inside me grieves for you, even though we’ve never met. I’ll never know who you were or what you might do.

It’s given me a shock. I thought the trauma of fertility treatment was over. We had our glorious girls, and our Miracle to boot. Yet this decision has affected me deeply. We’ve had to let you go. We cannot give you to others, or even to other clever people to learn how to help other couples escape from the hellish wilderness years. We couldn’t leave you in the freezer forever.

I don’t know if there’s a place you can go to while your soul waits for another Mummy and Daddy. I like to think there is. And if there is, I hope you get the nicest family in the world – full of warmth where you’ll never be cold again.

So goodbye, my nearly loves. The ones that never were.

xxx

*This is a photograph of the frosty that became Medium as a three-day embryo, defrosted after a year in storage the day before.

sl_embryo

A goodbye to those I’ve not met